Hi, my name is Lori Ann Blakeley.

Welcome to my Web site developed and maintained on my behalf by my father, Larry Blakeley. http://www.royblakeley.name/larry_blakeley/larryblakeley_photos_jpeg.htm

My father also manages the following Web sites:

Larry Blakeley (Contact Info: larry at larryblakeley.com)

Major Roy James Blakeley (USAF - KIA) (December 10, 1928 - July 22, 1965) - my grandfather

Leslie Blakeley Adkins - my older sister

Evan Blakeley- my younger brother 

A Web page for giving notices of interest to visitors here. http://www.loriblakeley.name/notices_of_interest.htm

Various letters and notes here. http://www.loriblakeley.name/various_notes_letters.htm

What my brother, Evan Blakeley is up to with his baseball. http://www.evanblakeley.name

My mother's walking club for the students at Cockrell Hill Elementary School, DeSoto, Texas http://www.loriblakeley.name/article_dallas_morning_news_jackie_blakeley20070601.htm

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Lori and Jackie are back home.

Lori, Jackie and I will attend a chemotherapy educational class at Baylor tomorrow morning at 8:00 AM.

On Monday, Lori will start her first chemotherapy treatment.

Also, Jackie elaborated further on the telephone call from M.D. Anderson of yesterday - the next opening that Dr. Phan had available was nearly 2 weeks away - Wednesday, January 19th! No, thank you - from 2 unimpressed parents in Dallas.

Post Date: January 6, 2005 at 10:25 PM CST; January 7, 2005 at 0425 GMT

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Jackie just called me.

The general plan is to start chemotherapy to try to reduce the portion of the cancerous mass that has grown upwards from the main origination in her abdomen towards her heart. This chemotherapy treatment will take about 6 weeks. Then Lori will undergo another computerized tomography imaging to determine if it has broken away, or receded from the heart - which will enable surgery to be performed to remove as much of the mass as possible.

Adrenal carcinoma affects the secretion of hormones and Lori's complexion was affected by this increase in hormone secretion. A new medication Dr. Fojo has prescribed for her should reduce this effect and also lower her blood pressure - which has been elevated because of the tumor.

This next stage - chemotherapy treatment - will be ongoing here in Dallas. Jackie and Lori are both very tired and will return to Dallas tomorrow on an afternoon flight after a good night's sleep.

Also, M.D. Anderson called Jackie and said they had cancelled Lori's appointment for Friday because Dr. Phan was not going to be around. Thus, our decision to take Lori to Dr. Fojo produced immediate results for her - otherwise she (as well as mom and dad) would be waiting no telling how much longer to pass through the processes that occurred with Dr. Fojo today.

Post Date: January 5, 2005 at 7:05 PM CST; January 6, 2005 at 0105 GMT

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I heard from Jackie around 2:00 PM CST.

She said that Lori got sick before the flight became airborne and the flight attendants moved them both to first class - which was very much enjoyed by Lori (and I'm sure Jackie, as well).

They did not get to their hotel room until 3:30 AM PST - and were in Dr. Fojo's office at 10:00 AM PST.

Lori went through another computerized tomography imaging (since her last imaging at Lubbock was performed about a month ago) and Dr. Fojo entered the office as Jackie was relaying this information to me.

That is all that I know at this time, but will post further info just as soon as I hear back from her this evening.

Post Date: January 5, 2005 at 6:10 PM CST; January 6, 2005 at 0010 GMT

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He asked, "Are these your children?" http://www.lori.blakeley.name/index.htm

I replied, "Yes, they are."

He said, "They are beautiful children."

And, within 24 hours after that conversation between me and Antonio Tito Fojo, M.D., Ph.D. (as well as several subsequent conversations between him and my wife, Jackie) http://ccr.cancer.gov/staff/staff.asp?profileid=5729 at the Cancer Therapeutics Branch of the National Cancer Institutes' Center for Cancer Research, Bethesda, Maryland - following this initial email exchange of the same date http://www.lori.blakeley.name/email_exchange_tito_fojo20050103.htm of Monday, January 3, 2005 - Jackie and Lori boarded an American Airlines flight leaving the Dallas/Fort Worth International Airport at 9:45 PM, Tuesday, January 4, 2005 for a non-stop flight arriving at the Baltimore/Washington International Airport at 2:00 AM PST in order to meet with this man that same morning at 10:00 AM PST.

They are carrying with them all of Lori's computed tomography imaging film ("CT Imaging" http://www.radiologyinfo.org/content/ct_of_the_body.htm), magnetic resonance imaging film ("MRI Imaging" http://www.radiologyinfo.org/content/mr_of_the_body.htm), positron emission tomography imaging film ("PET Imaging" http://www.radiologyinfo.org/content/petomography.htm), and biopsy slides.

Why did we decide to spurn M.D. Anderson in order to meet with Dr. Fojo?

Was it because of no response from my email of desperation?

Was it because Dr. Fojo touched a special place in my heart by revealing the goodness in his heart and soul in his remarks about our children?

Or, possibly was it because of his method of expediency in a situation that calls for an "aggressive doctor?"

I can't speak for Jackie, but for me you have to go back to a lesson I learned when I was only 13 years old.

I wrote an article about this experience and posted it to the Web page http://www.royblakeley.name/larryblakeley/articles/articles_larryblakeley.htm and concluded this life's experience of mine as follows:

"... To this day, I have always gone with me heart and my mind on issues of judgement. If these organs of mine are telling me one thing and someone is telling me another - I go with my gut feelings...."

The name of the article is "The Day She Let Her Guard Down", November 16, 2004 http://www.royblakeley.name/larryblakeley/articles/day_let_guard.htm

Post Date: January 4, 2005 at 11:20 PM CST; January 5, 2005 at 0520 GMT

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This email http://www.lori.blakeley.name/email_to_rena_sellin20050102.htm was sent to Dr. Rena V. Sellin at M.D. Anderson Cancer Center, but never replied to by Dr. Sellin.

What does that mean? Possibly nothing, or possibly something.

How much effort does it take to hit the "reply" button?

Would you hit the "reply" button?

Post Date: January 4, 2005 at 10:30 AM CST; 1630 GMT

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Here is a "Web page dedicated to patients, caregivers, physicians, and researchers whose interest is the rare cancer adrenocortical carcinoma. We hope you find this site helpful and informative." http://pages.zdnet.com/beverlin/adrenocorticalcarcinoma/

A quote by Richard Beverlin, Jr., Kemah, Texas (the creator of this Web page of information) about the book "Finding Hope When Doctors Say There Is None: Surviving Cancer in the Harsh World of HMO Medicine," by F.H. Scribner:

"... I provide this review from the viewpoint of a spouse of a rare cancer patient and a scientist/researcher who has an interest in novel cancer treatment and funding for rare cancer research. My wife and I have faced many of the author's struggles and trials-including hearing that there is-"no cure or little hope for curing this cancer. My wife is battling the same rare cancer-adrenocortical carcinoma that Mr. Scribner has battled these many years! God not man controls our time on this earth. It reminds us of the importance of reaching out to help others in any way we can with our knowledge and caring."

Post Date: January 4, 2005 at 9:35 AM CST; 1535 GMT

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This is an abstract posted here http://www.larryblakeley.com/Articles/monthly_articles/recent_articles_of_interest.htm/

File Name: kristen_philipkoski20050103

Patients diagnosed with cancer are often prescribed drugs they know little about, and researching the risks and benefits can be daunting, if not impossible, in the time frame a cancer patient has to work with. It's too late for one set of parents whose son died of brain cancer in 1999, but they hope to help other families with a Website they launched on Jan. 1.

Michael and Rafaele Horwin's 2-year-old son Alexander http://www.ouralexander.org/ died of brain cancer in 1999 after doctors administered what they said was the best treatment available. Despite the risk of side effects including infection, heart damage, lung damage, deafness, infertility and a second cancer, just to name a few, they trusted the doctors when they said this was the best option. Alexander's cancer quickly spread through his entire body, and he died four months later. The Horwins were horrified and angry to later discover studies that showed the same chemotherapy had hastened the deaths of hundreds of other children the same age with the same brain cancer.

Had they found this research earlier, they would have made different treatment choices, the Horwins believe. They hope Cancer Monthly http://www.cancermonthly.com/, a free site they developed with friends, will help patients compare treatment options and find out whether they improved previous patients' quality of life.

"It's not rocket science," Michael Horwin said. "We take medical literature - published studies - and present it in a language that a cancer patient can understand. Now a cancer patient can compare treatment based on actual clinical results."

- "Posting Straight Facts on Cancer," Kristen Philipkoski, WiredNews.com http://www.wired.com, January 3, 2005, http://www.wired.com/news/medtech/0,1286,66130,00.html

Directory: http://www.larryblakeley.com/Articles/monthly_articles/

File Name: kristen_philipkoski20050103

Post Date: January 4, 2005 at 7:35 AM CST; 1335 GMT

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In addition to and concurrently with the appointment on Friday at M.D. Anderson Cancer Clinic with Dr. Alexandria Phan we are pursuing other opinions - one of which is with Antonio Tito Fojo, M.D., Ph.D. http://ccr.cancer.gov/staff/staff.asp?profileid=5729 at the Cancer Therapeutics Branch of the National Cancer Institutes' Center for Cancer Research, Bethesda, Maryland.

Post Date: January 3, 2005 at 8:50 PM CST; January 4, 2005 at 0250 GMT

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This email http://www.lori.blakeley.name/email_to_rena_sellin20050102.htm was sent to Dr. Rene V. Sellin at M.D. Anderson Cancer Center. Dr. Sellin's email address and position with the adrenocortical carcinoma clinical treatment and research at M.D. Anderson was learned from a Web site of a current surivor of this cancer, Arlyn at http://www.followingthesun.org/.

This Web page of Arlyn's contains information about Dr. Sellin and the Adrenocortical Carcinoma Research Fund at M.D. Anderson. http://www.followingthesun.org/mda_fund.html

Post Date: January 3, 2005 at 6:50 AM CST; 1250 GMT

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Adrenocortical Carcinoma information at National Cancer Institute http://www.nci.nih.gov/ can be found at this Web page:

Cancer of the Adrenal Cortex http://www.nci.nih.gov/cancertopics/pdq/treatment/adrenocortical/

Post Date: January 1, 2005 at 4:30 AM CST; 1030 GMT

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Lori has an appointment on Friday, January 7, 2005 with Alexandria Phan, MD http://www2.mdanderson.org/app/clinical/details.cfm?id=130164, Assistant Professor, GI Medical Oncology division of M.D. Anderson.

Post Date: December 30, 2004 at 2:30 PM CST; 2030 GMT

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The Christmas holidays (and New Years coming up) seemed to have created a rather void time period of discontinuity with Lori's progression to the next stage of dealing with her cancer.

However, this morning at 10:00 AM Lori met with with her admitting medical oncologist, Kartik Konduri with the Texas Oncology, P.A., in Baylor's Sammons Cancer Building this morning at 9:30 AM.

This meeting consisted of Dr. Konduri giving an overview of the options available for Lori - one of which Dr. Konduri and Dr. Lieberman recommend - that is to visit with a doctor at The University of Texas M.D. Anderson Cancer Center, Houston, Texas that is conducting clinical trials for treating this relatively rare cancer (adrenal carcinoma).

Lori will hopefully be able to visit with this doctor in Houston next week.

Post Date: December 29, 2004 at 12:20 PM CST; 1820 GMT